One thing chronic illness guarantees is uncertainty. One thing a global pandemic, in the form of COVID-19, guarantees is uncertainty. No matter how much we might like to think we have things under control, our bodies, diseases, unexpected life events, loss of loved ones, always find a way of creating times of chaos, confusion, fear … Continue reading Facing An Uncertain New Year
I have a “Now or Never” philopsophy to life that sometimes gets me into trouble. Well, let’s face it….always gets me into trouble! Living with a physical progressive disability involves a lot of pain, lack of mobility and extreme fatigue every day. This kind of disease is constant. It doesn’t ebb and flow with flares. … Continue reading My Latest Podcast….A Pushing And Pacing Approach With Chronic Disability
For 8 days in November 2017 I lay in a hospital bed basically writhing in pain. Rewind to the beginning of that 8 day period and I was being rushed to hospital in an ambulance as my left leg, the one with the non union femur fracture, was like a wooden block and it would … Continue reading A Hospital Stay To Remember…..Or Perhaps Forget!!
I was loading my dishwasher this morning and fighting with a plate refusing to fit in. It wasn't really the plates fault. I was in severe lower back pain and trying to get the task over as quickly as possible. I was also trying to fit way too much into this particular load.....as you do!! … Continue reading “Where There’s A Will There’s A Way”….Is It Really That Easy?
I'm a huge fan of pacing. It's number one on my list of key chronic illness/ pain management strategies. Pacing doesn't remove symptoms or take all my pain away. It does help to reduce some discomfort and reduces the risk of me causing an escalation of more crippling issues. Well, usually it does that!! My … Continue reading Sometimes A “Sick Day” Is Necessary, Even If You Are Already Chronically Ill
I have a "Now or Never" philopsophy to life that sometimes gets me into trouble. Well, let's face it....always gets me into trouble! Living with a physical progressive disability involves a lot of pain, lack of mobility and extreme fatigue every day. This kind of disease is constant. It doesn't ebb and flow with flares. … Continue reading Pushing And Pacing With A Progressive Chronic Disease….Courageous Or Stupid?
Those of us living with chronic illness will know only too well how our bodies rebel against us with little warning. Every morning I tentatively wake up, opening one eye at a time very slowly, scared to move. Will my body behave a little today? Will the slightest movement cause searing pain? Usually it's the … Continue reading Body Behaving Badly
At the start of a new week or month, I have a, "what's on your calendar?" segment on my Facebook Forum, Medical Musings with Friends. The idea is to take a quiet moment, to think about what lies ahead. We muse about how we are feeling, what we are concerned about, what we are excited about. … Continue reading A Chronic Disease Management Plan – Do You Have One?
I'm nearly 4 weeks post surgery and this time around seems so much harder than all the others. I think the main reason for that is because I was only 8 weeks post surgery on my broken leg when I had this rod inserted into the other leg. Having 2 legs with titanium rods from … Continue reading 4 week and counting
My Medical Musings 