I have a “Now or Never” philopsophy to life that sometimes gets me into trouble.
Well, let’s face it….always gets me into trouble!
Living with a physical progressive disability involves a lot of pain, lack of mobility and extreme fatigue every day. This kind of disease is constant.
It doesn’t ebb and flow with flares. It’s there all the time, slowly worsening.
The sensible approach to this kind of chronic illness life is to pace all activities, listen to your body and lower all expectations.
Generally I do. I advocate pacing, live and breathe it actually.
Partly I don’t have a choice, plus I know it helps enormously with pain management.
The problem is, despite living with a severe disability for over 6 years, my mind still seems to disconnect from my body on occasion.
I can still visualize myself jumping out of my chair and cleaning the kitchen, dusting the shutters, wiping down the bathroom tiles, making the bed, getting dressed, doing hair and makeup and looking like “little Miss Perfect” with all the ease of a healthy 18 year old.
In my latest Podcast Episode, I’m sharing my “Pushing and Pacing Approach”
I really hope it helps those of you struggling with wanting to get things done, especially in the lead up to Christmas. You are no doubt wondering how on earth you achieve anything physically.
Please click here to listen to the full Podcast Episode of “Pushing and Pacing” and remember you can listen on any Podcast app. A Pushing And Pacing Approach With Chronic Disability
If you’re looking for genuine support, care, understanding and friendship, you are so welcome to join my closed Facebook support forum, Medical Musings with Friends . It’s a safe place to connect with others living with chronic and complex diseases, who truly understand the daily challenges. A warm welcome awaits.
If you prefer an audible version of more blog posts, please check out my Podcast, Medical Musings With Sam
I’m a Contributor at “The Mighty”. You can check out my published articles at My Author Page
I also write @ Blogs by Christian Women
If you would like to read a little more about my journey, here’s the link to My Story