Part Two of My Interview as a Guest on, “I Am Not My Pain Podcast”, with Host Melissa Adams

I am so excited to share part two of my interview with Melissa on her podcast, "I Am Not My Pain Podcast". In case you missed part one, which includes my introduction to Melissa and how we met, here is the link to my blog post containing everything you need to know, including the Podcast … Continue reading Part Two of My Interview as a Guest on, “I Am Not My Pain Podcast”, with Host Melissa Adams

My Interview as a Guest on, “I Am Not My Pain Podcast” …..With Host Melissa Adams

I'm so excited to share with you my interview as a Guest on "I Am Not My Pain Podcast. This is part one, of a two part interview. I was so honoured to be invited by Melissa to talk about my health story, my blog, my book, my forum and even more importantly, how I … Continue reading My Interview as a Guest on, “I Am Not My Pain Podcast” …..With Host Melissa Adams

My Chronic Illness Rule Book ….(My Four Day Rule)

(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading My Chronic Illness Rule Book ….(My Four Day Rule)

“Grief is the price we pay for love.” Queen Elizabeth II

I awoke to the sound of rain pouring down, and the sky was as black as the ace of spades. My body, as is normal, was screaming at me, as lying in bed for 6 hours causes every joint to seize, and my broken bones burn. I slowly twisted my legs off the bed and … Continue reading “Grief is the price we pay for love.” Queen Elizabeth II

There is Something Good in Every Day…Even With Chronic Disease

There is something good in every day. Is there? Is that even a possible concept for those of us who have chronic diseases? The initial response from the chronic illness community is likely to be a resounding "No". Pain, procedures, lack of sleep, lack of understanding, countless medical appointments and tests, chronic fatigue, lack of … Continue reading There is Something Good in Every Day…Even With Chronic Disease

My Chronic Illness Clown For The Day!

"I'm going to be your clown for the day" These are the words my husband greeted me with, as I munched on my cornflakes. I knew instantly why, but I imagine his statement will require some explaining. I had a crazy idea I could take on a bigger workload. As my regular readers will know, … Continue reading My Chronic Illness Clown For The Day!

Live Your Best Life….And What Did Sam Do Next?

(This is an excerpt from Chapter Two of my book, My Medical Musings, A Story of Love, Laughter, Faith and Hope, available as an e-book or paperback through Amazon or ImagineWe Publishers. It also provides an update, as promised, to an earlier blog, "What Sam Did Next") How do you continue to live life to … Continue reading Live Your Best Life….And What Did Sam Do Next?

Can You Have A Chronic Illness And A “To Do List”?

How many times have you written a "To Do List" this week?How many times have you looked at the list and felt like it's an impossible dream?How many times have you felt useless because you've only ticked off a few items?How many times have you looked at the list and felt like it's been taunting … Continue reading Can You Have A Chronic Illness And A “To Do List”?

Seize The Day

This week I celebrated my 57th birthday! I wasn't going to reveal my age but then I thought, "wow I'm 57....I made it to 57". So with that thought I realised I should shout it from the mountain top. My health has not been kind for the past 15 years and on a few occasions … Continue reading Seize The Day

It’s Never As Easy As…

How many times have you said, “No worries, that’s as easy as…….”I know I’ve said it countless times during my life. In fact its how I used to live my life. Everything was seemingly easy and if it wasn’t, I could quickly convince myself it was.I had a positive can do, absolutely, yes to everything, … Continue reading It’s Never As Easy As…