When living with chronic illness, and particularly chronic pain, life needs a level of certainty, of routine. To a large degree we can create workable daily routines, manage our medications and medical appointments, and keep life ticking along so we maintain our equilibrium as much as possible. I actually love change. Throughout my career I … Continue reading Nothing Lasts Forever
“Life is too short, take nothing for granted” Catch phrases roll off our tongues at one time or another. I hazard a guess, they have a slightly different meaning for all of us. On my Facebook Support Group, we often have a segment called “Thankful Thursday". Members share a few things they are grateful for … Continue reading Life Is Too Short Not To Be Grateful !
(In loving memory of my precious Dad, who passed away peacefully on Easter Monday) One of my earliest childhood memories is being on the passenger ship "Aurelia". I was 3 years of age and embarking on a journey that would change the entire course of my life. I was migrating from the United Kingdom to Australia … Continue reading A Carousel Of Memories And Moments
Be joyful in hope, patient in affliction, faithful in prayer. (Romans 12 v 12) Is it possible to have patience in the midst of affliction? No matter the cause of affliction, no one wants to stay in a state of pain or distress or turmoil. Our immediate response in any traumatic event is to want it over … Continue reading Prayer, Patience Purpose and Pain
One thing chronic illness guarantees is uncertainty. One thing a global pandemic, in the form of COVID-19, guarantees is uncertainty. No matter how much we might like to think we have things under control, our bodies, diseases, unexpected life events, loss of loved ones, always find a way of creating times of chaos, confusion, fear … Continue reading Facing An Uncertain New Year
"You better watch out You better not cry You better not pout I'm telling you why... Santa Claus is coming to Town!!" It's Christmas Eve!! I think it's always been my most favourite day of the Christmas period ever since I was a young girl. The excitement and anticipation of Christmas Day just around the … Continue reading It’s Christmas Eve……Chronic Illness Style
How many times have you jumped to a wrong conclusion about something? How many times have you inadvertently assessed a situation from the entirely wrong angle? How many times have you completely misjudged someone? Without even realising it, we all easily do this on a regular basis. Tiredness, busyness, listening to others views and opinions, … Continue reading We All Need To Be Understood…Everyone Has A Story
(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading Where’s The “Off The Charts” Rule Book?
For some time I've really admired people who Vlog. It's such a great way to interact with followers and convey, in an easy relaxed way, a message which could get lost in the written word of blogging. It's also terrifying! I've always been used to Public Speaking throughout my working life. Somehow that was different. … Continue reading Dipping My Toe In The World of Vlogging
Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husbands, wives, life partners, siblings, parents, children, even grandparents. Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain, or watch the person they're caring for lose their ability … Continue reading Caring For The Carer