I'm a huge fan of pacing. It's number one on my list of key chronic illness/ pain management strategies. Pacing doesn't remove symptoms or take all my pain away. It does help to reduce some discomfort and reduces the risk of me causing an escalation of more crippling issues. Well, usually it does that!! My … Continue reading Sometimes A “Sick Day” Is Necessary, Even If You Are Already Chronically Ill
As a New Year gets under way it's usual to think about the year ahead and set goals both for your personal and business life and perhaps plan holidays or other adventures. I did that for years. It's summer in Australia and generally known as a holiday month. Schools are closed and many businesses are … Continue reading Plans? What Plans?
Unrelenting levels of pain, excruciating pain, day in day out is isolating, exhausting. It's so hard to describe to others who have not experienced this kind of life altering agony. I know there are so many people who suffer enormous pain each and every day, who perhaps can’t find their voice to explain it or … Continue reading Shining a Light on Living with Chronic Pain
When you've lived with Chronic Illness for a number of years, at some point, you adjust to a new way of living. You eventually find a new norm. While you might expect a few highs, lows and some disease flares along the way, generally life evolves into a settled and comfortable pattern. Until it suddenly, … Continue reading Suddenly So Surreal
Every morning I wake up thinking, "Today will be a better day" Everyday, for more years than I care to count, I finish the day feeling battle weary. Every night I close my eyes to sleep, clinging to the hope that sleep will be renewing and I will wake up feeling refreshed. Every night I … Continue reading Clinging To Hope….Maybe Tomorrow Will Be Better
One of my earliest childhood memories is being on the passenger ship "Aurelia". I was 3 years of age and embarking on a journey that would change the entire course of my life. I was migrating from the United Kingdom (London) to Fremantle, Western Australia with my parents and my older brother. Fuzzy and Special Memories … Continue reading A Carousel of Memories and Moments
I love life's little challenges. I love problem solving and turning obstacles into opportunities. I love putting positive spins on what would otherwise be a very negative situation. I've done that all my life, both in my personal life and my working life. So, chronic disease really wasn't going to change that about me. It's … Continue reading When All Else Fails….Just Cancel The Day