Ultimately, it doesn’t matter what day it is.It matters that I make the most of every single day and make the moments within the day count. It matters that I don’t waste time being discontent about my circumstances.
As a patient advocate, I am often called, inspiring, motivating, and full of strength despite my adversities. The truth is that most days, I am just treading water.
There is always the temptation, when appointments or commitments are cancelled, to fill the time with other things. I know I can't, even though my head is always full of great ideas. My body is screaming at me. I have to listen to it.
I don’t want to be a prisoner to my disease. I want to scale whatever heights I can safely push, and ultimately I’m the only one who can decide my limits.
For someone with a body failing at every opportunity, the joy and hope Easter offers is one day I will have a new life in heaven and a new body. Imagine no more sorrow or pain. How beautiful and what amazing grace to receive such a gift. At Christmas, we so easily celebrate the birth … Continue reading A Messy Easter
Turning off Netflix and listening to the silence filling the room, can be so relaxing. Suddenly the birds outside can be heard tweeting, rather than Twitter chirping at you with a notification on your phone.
Rather than expecting a perfect life filled with halcyon days, I choose to love and cherish the moments of my life where I can engage with some of the activities I enjoy.
As Christmas Day fast approaches I imagine most of us, in the chronic illness community, are musing about what we want to realistically achieve over the holiday period. For those of us with chronic disease it can be an incredibly overwhelming time. Just trying to be happy for others, when your body is screaming at … Continue reading Have Yourself A Merry Little “Chronic Illness” Christmas!
Hi Everyone, I recently wrote a letter to the members of my support forum, Medical Musings with Friends . I wanted to apologise for being so quiet with replying to their comments on the forum, and not commenting on posts in general lately. I've managed to schedule daily segments to encourage community and discussion, but … Continue reading A Personal Letter from Sam….My Health and Life Update and an Apology.
I am so excited to share part two of my interview with Melissa on her podcast, "I Am Not My Pain Podcast". In case you missed part one, which includes my introduction to Melissa and how we met, here is the link to my blog post containing everything you need to know, including the Podcast … Continue reading Part Two of My Interview as a Guest on, “I Am Not My Pain Podcast”, with Host Melissa Adams
My Medical Musings 