Unrelenting levels of pain, excruciating pain, day in day out is isolating, exhausting. It's so hard to describe to others who have not experienced this kind of life altering agony. I know there are so many people who suffer enormous pain each and every day, who perhaps can’t find their voice to explain it or … Continue reading Shining a Light on Living with Chronic Pain
I love life's little challenges. I love problem solving and turning obstacles into opportunities. I love putting positive spins on what would otherwise be a very negative situation. I've done that all my life, both in my personal life and my working life. So, chronic disease really wasn't going to change that about me. It's … Continue reading When All Else Fails….Just Cancel The Day
Every morning I wake up thinking, “Today will be a better day” Everyday, for more years than I care to count, I finish the day feeling battle weary. Every night I close my eyes to sleep, clinging to the hope that sleep will be renewing and I will wake up feeling refreshed. Every night I … Continue reading A New Day Will Dawn Every Morning….Clinging to Hope
We all make decisions every day. Big decisions, small decisions. Some we are aware of and some are just automatic. When I had reasonable health, I would spend my days making business and personal decisions without much effort. Some might have kept me awake at night but not many. I never had to think about … Continue reading Tackling Decisions Chronic Illness Style
Sometimes, all I need is a spoonful of strength. Living with a chronic disease reminds me of some of my previous plane trips. I’d start off full of nervous anticipation with a little fear of what lay ahead once on board. There were some smooth passages and then all of a sudden we’d hit almighty … Continue reading Calming Chronic Illness Turbulence With A Spoonful of Strength
One thing no one wants, when you have Chronic Illness, is another diagnosis to add to the ever-growing list. There are times though when a new diagnosis brings a renewed sense of hope, relief and determination to fight on. After spending 8 days in hospital following my recent repeat spinal surgery, I returned home feeling … Continue reading So Now I’m Insufficient….In An Adrenal Kind Of Way!
I'm a huge fan of pacing. It's number one on my list of key chronic illness/ pain management strategies. Pacing doesn't remove symptoms or take all my pain away. It does help to reduce some discomfort and reduces the risk of me causing an escalation of more crippling issues. Well, usually it does that!! My … Continue reading Sometimes A “Sick Day” Is Necessary, Even If You Are Already Chronically Ill