Taking Time to Reflect

Turning off Netflix and listening to the silence filling the room, can be so relaxing. Suddenly the birds outside can be heard tweeting, rather than Twitter chirping at you with a notification on your phone.

Have Yourself A Merry Little “Chronic Illness” Christmas!

As Christmas Day fast approaches I imagine most of us, in the chronic illness community, are musing about what we want to realistically achieve over the holiday period. For those of us with chronic disease it can be an incredibly overwhelming time. Just trying to be happy for others, when your body is screaming at … Continue reading Have Yourself A Merry Little “Chronic Illness” Christmas!

A Personal Letter from Sam….My Health and Life Update and an Apology.

Hi Everyone, I recently wrote a letter to the members of my support forum, Medical Musings with Friends . I wanted to apologise for being so quiet with replying to their comments on the forum, and not commenting on posts in general lately. I've managed to schedule daily segments to encourage community and discussion, but … Continue reading A Personal Letter from Sam….My Health and Life Update and an Apology.

Part Two of My Interview as a Guest on, “I Am Not My Pain Podcast”, with Host Melissa Adams

I am so excited to share part two of my interview with Melissa on her podcast, "I Am Not My Pain Podcast". In case you missed part one, which includes my introduction to Melissa and how we met, here is the link to my blog post containing everything you need to know, including the Podcast … Continue reading Part Two of My Interview as a Guest on, “I Am Not My Pain Podcast”, with Host Melissa Adams

Don’t Miss the Mini Gifts and Miracles in Your Life

Sometimes, all I need is a teaspoon of hope in the form of mini miracles.Living with a chronic disease reminds me of some of my previous plane trips. I’d start off full of nervous anticipation, with a little fear of what lay ahead once on board. There were some smooth passages and then all of … Continue reading Don’t Miss the Mini Gifts and Miracles in Your Life

A Year Later…One Step, Two Steps…Will There Be A Third?

Some dates are forever etched in our memories. I have a few but there are two I will never forget. October 6th 2014 is the first. It was the day my femur broke.   It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that … Continue reading A Year Later…One Step, Two Steps…Will There Be A Third?

My Chronic Illness Rule Book ….(My Four Day Rule)

(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading My Chronic Illness Rule Book ….(My Four Day Rule)

“Grief is the price we pay for love.” Queen Elizabeth II

I awoke to the sound of rain pouring down, and the sky was as black as the ace of spades. My body, as is normal, was screaming at me, as lying in bed for 6 hours causes every joint to seize, and my broken bones burn. I slowly twisted my legs off the bed and … Continue reading “Grief is the price we pay for love.” Queen Elizabeth II