A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husbands, wives, life partners, siblings, parents, children, even grandparents.Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain, or watch the person they're caring for lose their ability to … Continue reading Caring For The Carer
There is always a lot I can write about in regards to my health but today I want to say “Happy Easter”.This is such a wonderful time of the year, full of the hope of new life, as we remember what Jesus did for us on the cross, dying so we might be saved and … Continue reading A Sweet Happy Easter!
When living with chronic illness, and particularly chronic pain, life needs a level of certainty, of routine. To a large degree we can create workable daily routines, manage our medications and medical appointments and keep life ticking along so we maintain our equilibrium as much as possible. I actually love change. Throughout my career I … Continue reading Nothing Lasts Forever…Time For A New Chapter
Ok, the title of this blog post is probably more confusing than it is enlightening. Let's go for "intriguing" and hopefully together we will unpack it's hidden treasures. I was listening to a sermon on Sunday morning and the preacher made an interesting comment, causing me to listen a little more intently than I had … Continue reading Stones or Balloons?
2022 is upon us!A new year awaits. Will it be a good year, a difficult year, a happy year, a sad year?One thing is certain, none of us really know.This time last year, none of us knew how challenging 2021 would continue to be. I doubt a rampant, infectious virus, creating an ongoing and seemingly … Continue reading Our Tapestry of Life
Some dates are forever etched in our memories. I have a few but one is a day I will never forget October 6th 2014. It was the day my femur broke. It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that even Specialists … Continue reading One Step, Two Steps…..Will There Be A Third?
Some challenges in life hit us so hard, as we never saw them coming. Such challenges don't allow us the luxury of preparing ahead of time. They give no warning. They simply arrive! My "acute" spinal collapse , would prove to be one of the hardest challenges I have ever faced, and I've documented a … Continue reading Hard Work In Hospital
It was 3am Tuesday morning, 7th September, 2021. I desperately needed to go to the bathroom, so I rolled out of bed, the way physiotherapists had always shown me to do. I reached for my awaiting crutch and made it to the ensuite, not without pain, with my usual pain. I got back into bed … Continue reading An Acute Life Changing Chapter
I thought I was pacing at a level which couldn't possibly get any slower. My last blog post gave you a Peek Through My Window Of Pain. It details how slowly I need to move, how limited my physical functionality is. Despite my limitations, I have been comfortable with my daily routine, with my ability … Continue reading My Burst Bubble Of Contentment
Pain can’t just be ignored. Disease can’t just be ignored. People with disease and pain can’t just be forgotten. I’m not alone in suffering horrific daily pain. So many in society struggle every day. Some manage to work or interact with the wider community in some way. Others like me, live a permanently reclusive life … Continue reading A Peek Through My Window Of Pain
My Medical Musings 