I’m Just Tired…So Tired and That’s Ok.

I don’t want sympathy. I don’t want people to feel sad. I just need to express the exhaustion I feel living with an unrelenting, cruel and downright disgusting disease.

Here We Go Again….More Medical Appointments Ahead!!

Feeling overwhelmed? Me too. I think that’s perfectly normal. They may be months away, but they are indelibly printed on our mind. It’s like we have a “post it note” stuck to our forehead, which, of course, only we can see!

A Bureaucracy  Marathon… Part Two of  Our “Fit to Drive” Medical Certificate Challenge!

I just don't understand why someone in government departments and medical practices can't come up with ways to make administrative requests disability friendly.

Is It Sunday, Monday, or Tuesday….And Does It Really Matter What Day It Is?

Ultimately, it doesn’t matter what day it is.It matters that I make the most of every single day and make the moments within the day count. It matters that I don’t waste time being discontent about my circumstances.

A Messy Easter

For someone with a body failing at every opportunity, the joy and hope Easter offers is one day I will have a new life in heaven and a new body. Imagine no more sorrow or pain. How beautiful and what amazing grace to receive such a gift. At Christmas, we so easily celebrate the birth … Continue reading A Messy Easter

Palms, Passover, and a Little Bit of Easter Peace

I love Easter as much as Christmas. For me, Easter is more relaxing and more reflective than Christmas…..just what I need at the moment as life continues to throw so many curveballs  out way health wise.

Why Do We Think We Can Do More Than We Are Capable Of? Why Don’t We Just Listen To Our Bodies?

How often do you tell yourself , "I should be doing such and such” or ” I’d better do this or that” ? We all do it. It’s like we are programmed from birth to constantly have a catalogue of, “should do, must do, better do”, all filed in the front of our minds for … Continue reading Why Do We Think We Can Do More Than We Are Capable Of? Why Don’t We Just Listen To Our Bodies?

Learning to Reclaim “Me”!

I need time to have fun again, to block out all the "have too's" and spend blocks of time feeling free to focus on unimportant things, trivial things, moments of not worrying about commitments, life stresses etc.