Asking “what if” can be paralyzing, even soul destroying. It can cause you to worry about a future scenario which may never happen. It can cause you to miss out on real joys in your life today.
Right Now I’m Thinking…What If?
Category: Plans
The Best Disability Advice I Ever Received Was Not What I Expected!
For two years, before medically retiring, I was still holding out hope of being able to return to work eventually, despite being on Income Protection and battling one health hurdle after the other. The realist in me knew I was facing a very different life, as I began to lose my ability to walk any … Continue reading The Best Disability Advice I Ever Received Was Not What I Expected!
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Cancel The Day, Cancel a Few Days….Just Remember It’s Important To Take Time To Look After Yourself.
There is always the temptation, when appointments or commitments are cancelled, to fill the time with other things. I know I can't, even though my head is always full of great ideas. My body is screaming at me. I have to listen to it.
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Embracing The Chronic Disease Circle of Change
(Warning: Some images in this blog post may be confronting) My approach to any life changing event always starts with making time to stop and think. It’s crucial to be deliberate and focused when dealing with change.
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What To Do When You Don’t Know What To Do!
(Including a Health Update) Sometimes the path ahead in life can seem a little unclear. Sometimes we are faced with a range of life choices, almost too many, which often complicate matters and require a great deal of thought….too much thought!! Sometimes we have limited choices, none of which are particularly helpful, so instead of … Continue reading What To Do When You Don’t Know What To Do!
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Taking Control Over My Calendar Catastrophe …Time For Some Annual Leave!
Have you looked at your Calendar at the start of a month and thought to yourself, ” What on earth was I thinking. I can’t possibly do all that!” I’m sure I’m not alone in this exclamation. As I scrolled through my calendar on my phone for the month ahead, I felt physically sick. It was … Continue reading Taking Control Over My Calendar Catastrophe …Time For Some Annual Leave!
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A Personal Letter from Sam….My Health and Life Update and an Apology.
Hi Everyone, I recently wrote a letter to the members of my support forum, Medical Musings with Friends . I wanted to apologise for being so quiet with replying to their comments on the forum, and not commenting on posts in general lately. I've managed to schedule daily segments to encourage community and discussion, but … Continue reading A Personal Letter from Sam….My Health and Life Update and an Apology.
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My Chronic Illness Rule Book ….(My Four Day Rule)
(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading My Chronic Illness Rule Book ….(My Four Day Rule)
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There is Something Good in Every Day…Even With Chronic Disease
There is something good in every day. Is there? Is that even a possible concept for those of us who have chronic diseases? The initial response from the chronic illness community is likely to be a resounding "No". Pain, procedures, lack of sleep, lack of understanding, countless medical appointments and tests, chronic fatigue, lack of … Continue reading There is Something Good in Every Day…Even With Chronic Disease
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My Chronic Illness Clown For The Day!
"I'm going to be your clown for the day" These are the words my husband greeted me with, as I munched on my cornflakes. I knew instantly why, but I imagine his statement will require some explaining. I had a crazy idea I could take on a bigger workload. As my regular readers will know, … Continue reading My Chronic Illness Clown For The Day!
My Medical Musings 