Life isn't always fun. It will always have highs and lows. Times when we are ecstatic. Times when we are happy. Times when we are content. Times when we are melancholy. Times when we are bored. Times when we just have to deal with drudgery. I'm sitting in the "dealing with drudgery" category at the … Continue reading Dealing With Daily Drudgery
Pain can’t just be ignored. Disease can’t just be ignored. People with disease and pain can’t just be forgotten. I’m not alone in suffering horrific daily pain. So many in society struggle every day. Some manage to work or interact with the wider community in some way. Others like me, live a permanently reclusive life … Continue reading A Peek Through My Window Of Pain
When we think of Chronic Disease, we wouldn't usually have happy thoughts or find ourselves looking forward to a bright future. Fear, horror, uncertainty and grief are generally the normal response. However, the reality of living a chronic illness life can be quite liberating, as I've surprisingly found over the past 7 years. One of … Continue reading You’ve Created A “Chronic Illness Career”….Don’t Forget To Have A Weekend!
I love life's little challenges. I love problem solving and turning obstacles into opportunities. I love putting a positive spin on what would otherwise be a very negative situation. I've always done this, both in my personal and my working life. So, chronic disease really wasn't going to change my approach to finding a way … Continue reading The Non Negotiable Chronic Illness Rule
You’re probably wondering what on earth the title to this blog post means. How can you be “Blissfully Broken”? No I haven’t gone mad…..ok, maybe just a little! I’m musing about my life as it stands today. When chronic illness is complex it’s easy to feel overwhelmed. We can be diagnosed with so many adjunct … Continue reading Blissfully Broken
This week the world is mourning the death of Prince Philip, Duke of Edinburgh. Closer to home, I am mourning the death of my precious Dad. The Royal Family and I are worlds apart on so many levels, yet grief is something no one escapes in this life. At the end of the day we … Continue reading As The World Mourns…
Over the past couple of weeks I’ve been reading and editing some of my older blog posts. I’m no where near finished but it’s been such a worthwhile exercise so far. I’ve enjoyed reliving my journey, and discovering how much my writing style has changed, since I started blogging over 6 years ago. I’ve also … Continue reading My Mini Musings
I have a “Now or Never” philopsophy to life that sometimes gets me into trouble. Well, let’s face it….always gets me into trouble! Living with a physical progressive disability involves a lot of pain, lack of mobility and extreme fatigue every day. This kind of disease is constant. It doesn’t ebb and flow with flares. … Continue reading My Latest Podcast….A Pushing And Pacing Approach With Chronic Disability
I was loading my dishwasher this morning and fighting with a plate refusing to fit in. It wasn't really the plates fault. I was in severe lower back pain and trying to get the task over as quickly as possible. I was also trying to fit way too much into this particular load.....as you do!! … Continue reading “Where There’s A Will There’s A Way”….Is It Really That Easy?
My Medical Musings 