As Christmas Day fast approaches I imagine most of us, in the chronic illness community, are musing about what we want to realistically achieve over the holiday period. For those of us with chronic disease it can be an incredibly overwhelming time. Just trying to be happy for others, when your body is screaming at … Continue reading Have Yourself A Merry Little “Chronic Illness” Christmas!
I don’t generally suffer from anxiety. It doesn’t mean I don’t get stressed. Of course I do. We all do. My overall health situation can cause significant stress, on occasions, but I accept it is what it is, and I’m continually finding ways to adjust my life to accomodate it. Pain, when it’s at unrelenting … Continue reading Dancing To The Beat of My Own Drum..Chronic Illness Style!
I have sung all my life. School Choirs, Church Choirs, solos. Music and singing have been like food and water to me. They feed my soul. Over the past few years I have longed to sing with the energy and delight I used to sing with. My bone disease, pain and constant surgeries, have left … Continue reading How Can I Keep From Singing
I have just had the night from hell. Pain has soared through every bone, muscle and joint in my body as my bone disease attacks from every angle. I woke from a deep sleep screaming at 2am, causing my husband to jolt upright and run to my side. I couldn't move any limb. I was … Continue reading Joy in the Morning