It's so different from who I was physically but I'm still the same person with the same needs, same loves, same likes, same character.
I’m currently in an extreme pain cycle (that’s a civilized way of putting it) My bone disease is progressing. I have a pelvic stress fracture, ankle stress fracture, foot fractures in both feet, non-union broken femur and for good measure my Rheumatoid Arthritis is flaring. Put plainly, I hurt! Pain Is So Personal Pain is … Continue reading Writing My Way Through Pain
The beautiful Shannon from MS nuButterflies has nominated me for a Sunshine Blogger Award. Rather than boring you all with stories about me I decided to take the opportunity to introduce you to Shannon and her lovely blog 💗
I nominate the following bloggers to receive the award:
I was nominated for The Sunshine Blogger Award by Helen’s Journey. Helen shares her journey as she searches for a more natural approach to life. Part of her journey includes mindfullness , health, and living with Fibromyalgia. Click the link above to visit Helen.
Thank you so much for the nomination! I enjoyed getting to know the person behind the keypad . That’s what is great about these awards.
The Sunshine Blogger Award Rules
1. Thank blogger(s) who nominated you for the award and link back to their blog.
2. Answer the 11 questions the blogger asked you.
3. Nominate 11 new blogs to receive the award and write them 11 new questions.
4. List the rules and display the Sunshine Blogger Award logo in your post and/or on your blog.
Helen’s asks and my answers
1. Where in the world are you based and have you ever met up…
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What are the rules for living with a rare bone disease? Where can I find that rule book? That's the question my husband and I have been contemplating over recent weeks. I want to try and get out a bit more and when I suggested this great plan of mine, you should have seen the … Continue reading Where is the rule book?
I really wasn't sure if I wanted to reflect on 2017. Was it worth reflecting on my life with chronic disease? Did I achieve anything? Did I want to relive what at times felt like days and months of overwhelming pain? One of my coping mechanisms, that helps me live well with my rare disease, … Continue reading Reflect and Restart
A beautiful uplifting blog post, from my very special friend Erin, who is reflecting on all the things she is grateful for.
Erin lives with multiple chronic diseases, including debilitating Gastroparesis. Despite her own struggles, Erin has been an amazing support to me, personally and as one of the key moderators on both my Medical Musings with Friends Forum and linked Twitter account.
I’m so grateful for you Erin 💗
The Facebook group that I help moderate, Medical Musings with Friends, runs a weekly thread called ‘Thankful Thursdays’.
The wonderful lady who started the forum, Sam, encourages members to reflect on the things that we are thankful for each week. It’s an excellent exercise in gratefulness.
I’ve written before about being thankful, however I wanted to dedicate a specific post to some people and things that I am particularly appreciative for.
Within the first six month or so of dating my husband, I got pneumonia. He came to my aid and helped me out a lot. During our time dating, I was sick on and off, and had several bad injuries. He stuck by me, and made the decision to marry me. He didn’t know, however, that my issues would be permanent.
The last couple of years, when my health has declined, he has been…
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My beautiful friend Erin, blogger at A Chronic Spoonful, suffers from a horrible disease called Gastroparesis. August is Gastroparesis Awareness month & Erin has very clearly explained exactly what this disease is that she & many others relentlessly suffer from.
I’ll leave you to read Erin’s post.
Today, the 1st of August, kicks off Gastroparesis Awareness Month!
What is Gastroparesis and why is it important that we have a month dedicated to its awareness and advocacy?
Gastroparesis (GP) is a condition that basically means “paralysed stomach”. People who have it have stomachs that don’t work properly. Instead of being able to squeeze, digest, and move food on, their stomachs aren’t functioning well so food just sits there. That causes a host of symptoms such as nausea, vomiting, bloating, GERD, feeling full very quickly, etc.
Those symptoms can lead to malnutrition and dehydration, so GP patients can end up in hospital needing fluids, or on feeding tubes, or TPN.
Sadly, some patients with severe GP do die from it.
We need to care about this disorder there are people, myself included, who suffer every day.
There are limited treatments.
Medications and Botox often fail and/or stop working…
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