The weekend was not much fun as my stoma decided to seek attention. A phone call to my Colorectal Surgeon this morning has landed me admitted to hospital for review & treatment.....more hospital frequent flyer points to collect, except they don't have any.!! Now there's a business opportunity waiting for someone. On a more serious … Continue reading Room with a view – in hospital again
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My Leadership Musings—-Life before retirement
My Leadership Musings----Life before retirement.
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It’s all about the Genes! I’m about to become a Guinea Pig!
I received a long awaited phone call last week from a Qld Hospital Research Department, inviting me to take part in a research project that is aiming to discover what genes or new mutations of a known gene I have, that may be the cause of my disease. This was something my Endocrinologist had put me forward … Continue reading It’s all about the Genes! I’m about to become a Guinea Pig!
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Breaking News!!!……. ( actually news about my break)
Today was my much anticipated appointment with my Orthopaedic Surgeon and it went pretty much as I expected really. My leg is still broken and it is showing minimal signs of healing but all to be expected due to the nature of the break. He wants to see me again in 3 months, with further x … Continue reading Breaking News!!!……. ( actually news about my break)
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Dentistry Disappointment
Living with an idiopathic autoimmune disease basically means I never quite know what's around the corner. Could be exciting if it wasn't so exhausting! Yesterday was one of those days! I had been feeling off colour for about 10 days and then started to spike a low grade fever with swollen glands. None of that … Continue reading Dentistry Disappointment
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How Do You Cope?
I have been asked this question many times. Friends and acquaintances are always so relieved when they see me in person as I look so normal. I don't look sick and some of that is due to my coping mechanisms! It has also been well documented about the fact that autoimmune diseases, in general, don't cause … Continue reading How Do You Cope?
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Health Insurance….the joy of being on hold!
I have to go to the dentist next week and while my Dentist is lovely I really hate having to go. I'm not sure which is worse, the invasion in my mouth or whether the fact she always finds something catastrophically wrong with my teeth (thanks to the idiopathic nature of my disease) or the scary bill at the end … Continue reading Health Insurance….the joy of being on hold!
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Why Name My Stoma Rudolph?
Having a stoma requires a change of life and a change of mindset. Accepting that you now have to manage a normal bodily function a little differently is half the battle. For many people that can be an extremely difficult leap as they may have received their stoma in an emergency situation due to severe … Continue reading Why Name My Stoma Rudolph?
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I think I can, I think I can….oops….maybe not!
Sometimes my head thinks I'm wonder woman & decides to run ahead with a list of "things to do" without actually consulting with the rest of my body to see if in fact any movement at all is possible. The consequences of my head taking over, is that my body tries to keep up & … Continue reading I think I can, I think I can….oops….maybe not!
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Lets talk Medication and Rheumatoid Athritis
For many people a diagnosis of Rheumatoid Arthritis (RA) can take years to arrive at. I was fortunate in that it only took a few months following severe symptoms before my blood tests showed that I had positive Anti-CCP antibodies. These antibodies are only present at high levels in people with the more severe form of RA so my Specialists were … Continue reading Lets talk Medication and Rheumatoid Athritis
My Medical Musings 