A beautiful uplifting blog post, from my very special friend Erin, who is reflecting on all the things she is grateful for. Erin lives with multiple chronic diseases, including debilitating Gastroparesis. Despite her own struggles, Erin has been an amazing support to me, personally and as one of the key moderators on both my Medical … Continue reading Thankful Thursday: I’m Feeling Grateful!
Meditate on These Things
How often do you find yourself reaching for the phone, to send a text or email the moment something happens in your life? How often do you stop and pray first, asking God for strength and wisdom or thanking Him for the blessing? Does a Facebook post often take precedence over spending time reflecting in … Continue reading Meditate on These Things
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Accepting Reality
The term "Rare Disease" suggests unknown territory, complications and no easy answers. That terminology definitely describes my rare bone disease. My Orthopaedic Specialist appointment today didn't fully deliver on my great expectations but on some levels it did. It certainly delivered a sense of direction and further understanding of what it means to live with … Continue reading Accepting Reality
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RA Blog Week 2017 – A Feast of Great Blogs
This week I've had the pleasure of participating in the Annual RA Blog Week. It's a wonderful event for bloggers from around the world to share their insights on what it's like living with Rheumatoid Arthritis & often other associated autoimmune diseases. Each day of the week a topic is chosen for bloggers to write … Continue reading RA Blog Week 2017 – A Feast of Great Blogs
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How Sweet it is to Trust in Jesus
Years ago, when I was much younger, 22 to be precise, I was involved in the restoration of a historic church building. It had been left derelict for years. To see it returned to its original glory as a place of worship was amazing. After the restoration was completed, I would visit the church on … Continue reading How Sweet it is to Trust in Jesus
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Thank you Sweetheart
Behind every great man is a great woman, or so the saying goes. Let's flip that on it's head a little. Behind this chronically ill wife is an amazing husband. A husband who has become a full-time carer. A husband who has gone beyond the call of duty. A husband who has become my legs, … Continue reading Thank you Sweetheart
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Joy in the Morning
I have just had the night from hell. Pain has soared through every bone, muscle and joint in my body as my bone disease attacks from every angle. I woke from a deep sleep screaming at 2am, causing my husband to jolt upright and run to my side. I couldn't move any limb. I was … Continue reading Joy in the Morning
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A Leap Too Far
A week ago I posted a picture on Facebook of my first outing on my mobility scooter to our local Westfield Shopping Centre. It was a momentous occasion. The adrenalin of being able to move more than 50 metres kicked in and before we knew it 90 minutes had passed. It was a lovely afternoon and … Continue reading A Leap Too Far
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Gastroparesis Awareness Month!
My beautiful friend Erin, blogger at A Chronic Spoonful, suffers from a horrible disease called Gastroparesis. August is Gastroparesis Awareness month & Erin has very clearly explained exactly what this disease is that she & many others relentlessly suffer from.
I’ll leave you to read Erin’s post.
Sam xx
Today, the 1st of August, kicks off Gastroparesis Awareness Month!
What is Gastroparesis and why is it important that we have a month dedicated to its awareness and advocacy?
Gastroparesis (GP) is a condition that basically means “paralysed stomach”. People who have it have stomachs that don’t work properly. Instead of being able to squeeze, digest, and move food on, their stomachs aren’t functioning well so food just sits there. That causes a host of symptoms such as nausea, vomiting, bloating, GERD, feeling full very quickly, etc.
Those symptoms can lead to malnutrition and dehydration, so GP patients can end up in hospital needing fluids, or on feeding tubes, or TPN.
Sadly, some patients with severe GP do die from it.
We need to care about this disorder there are people, myself included, who suffer every day.
There are limited treatments.
Medications and Botox often fail and/or stop working…
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The Next “Leg” of My Journey
It's nearly 3 years since my left femur snapped in two. Those first two years I can barely remember. It's a blur of surgery after surgery, hospital stay after hospital stay, recovery after recovery. Actually recovery is probably the wrong word because I haven't recovered. My left femur is still broken. It's officially diagnosed as … Continue reading The Next “Leg” of My Journey
My Medical Musings 