A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
One of the things I have always loved is Interior Design. After working crazy hours, when I was able to work, I would like nothing better than to spend the weekend at home. It's always been my happy place. As a young girl I loved creating a new look in my bedroom regularly, using different … Continue reading Interior “Disability” Design
A week ago I had yet another spinal MRI, my second in three months. Something new happened on the left side of my lumbar spine a few weeks ago, which caused a massive increase in my disability. I can no longer stand for more than 5 or 10 mins at a time, even using aides, … Continue reading An Honest Chat With My Specialist….It Just Can’t Be Fixed!
What a day! I've just seen my GP, had blood taken & booked in a Bone Scan for Friday & a Breast Scan for next Friday...I must say I feel exhausted thinking about all the tests. I saw my Endocrinologist yesterday who is monitoring my Bone Disease and unfortunately my bone turnover has plummeted again … Continue reading Testing Times….medical tests that is!
I'm home from my surgery yesterday to have the interlocking screw removed from above my knee. My femur break is not healing and all the weight from my leg was being placed on the screw, causing pain but more worrying for my Surgeon was that he thought it was going to snap. The procedure was … Continue reading Surgery Done…tick…Recovery underway…tick
I received a long awaited phone call last week from a Qld Hospital Research Department, inviting me to take part in a research project that is aiming to discover what genes or new mutations of a known gene I have, that may be the cause of my disease. This was something my Endocrinologist had put me forward … Continue reading It’s all about the Genes! I’m about to become a Guinea Pig!
