Sometimes, all I need is a glimmer of hope in the form of mini miracles.Living with a chronic disease reminds me of some of my previous plane trips. I’d start off full of nervous anticipation, with a little fear of what lay ahead once on board. There were some smooth passages, and then all of … Continue reading Don’t Miss the Mini Miracles and Unexpected Gifts in Your Life.
"My inbuilt professional persona began to surface as I looked at the phone next to me on the bed. It was inevitable. I would answer this call with a bright and upbeat greeting, no matter the real picture of searing pain and chronic disease."
For two years, before medically retiring, I was still holding out hope of being able to return to work eventually, despite being on Income Protection and battling one health hurdle after the other. The realist in me knew I was facing a very different life, as I began to lose my ability to walk any … Continue reading The Best Disability Advice I Ever Received Was Not What I Expected!
"The quiet words spoken to us that morning brought amazing peace and linked beautifully into the promise of a safe path for our future."
(Warning: Some images in this blog post may be confronting) My approach to any life changing event always starts with making time to stop and think. It’s crucial to be deliberate and focused when dealing with change.
I don’t generally suffer from anxiety. It doesn’t mean I don’t get stressed. Of course I do. We all do. My overall health situation can cause significant stress, on occasions, but I accept it is what it is, and I’m continually finding ways to adjust my life to accomodate it. Pain, when it’s at unrelenting … Continue reading Dancing To The Beat of My Own Drum..Chronic Illness Style!
Hi Everyone, I recently wrote a letter to the members of my support forum, Medical Musings with Friends . I wanted to apologise for being so quiet with replying to their comments on the forum, and not commenting on posts in general lately. I've managed to schedule daily segments to encourage community and discussion, but … Continue reading A Personal Letter from Sam….My Health and Life Update and an Apology.
I am so excited to share part two of my interview with Melissa on her podcast, "I Am Not My Pain Podcast". In case you missed part one, which includes my introduction to Melissa and how we met, here is the link to my blog post containing everything you need to know, including the Podcast … Continue reading Part Two of My Interview as a Guest on, “I Am Not My Pain Podcast”, with Host Melissa Adams
I'm so excited to share with you my interview as a Guest on "I Am Not My Pain Podcast. This is part one, of a two part interview. I was so honoured to be invited by Melissa to talk about my health story, my blog, my book, my forum and even more importantly, how I … Continue reading My Interview as a Guest on, “I Am Not My Pain Podcast” …..With Host Melissa Adams
(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading My Chronic Illness Rule Book ….(My Four Day Rule)
My Medical Musings 