Some dates are forever etched in our memories. I have a few but there are two I will never forget. October 6th 2014 is the first. It was the day my femur broke. It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that … Continue reading A Year Later…One Step, Two Steps…Will There Be A Third?
I love life's little challenges. I love problem solving and turning obstacles into opportunities. I love putting a positive spin on what would otherwise be a very negative situation. I've always done this, both in my personal and my working life. So, chronic disease really wasn't going to change my approach to finding a way … Continue reading The Non Negotiable Chronic Illness Rule
"Hello, you're back again, so nice to see you, how are you?" You'd be forgiven for thinking this warm greeting was being given by a friend, a colleague, or a local shop owner who I'd known for years. This was the greeting I received by the Radiologist at my hospital, when I arrived for my … Continue reading MRI Marathon
There are times in my chronic illness adventure when I'm not sure what my next move should be. Symptoms worsen, test results reveal disease progression and my energy and desire to fight wanes. My medical team is very concerned but also cautious. Intervention can make things worse and every time I have surgery I'm never … Continue reading Chronic Illness Chess – Attack or Surrender
Saga by definition means, a long story of heroic achievement or, a long story full of incidents. This story is definitely the latter, no heroics to be found I assure you. Rewind three weeks ago and I woke up to find I couldn't turnover in bed. I had pain in my right lower back that … Continue reading A Spine Tingling Saga
Finally there is some good news!! I saw my Orthopaedic Surgeon yesterday to review my latest x-rays and discuss the increased pain in my left non union broken femur. So wait for it.....My leg seems to be suddenly attempting to make new bone at the break site, despite the bone graft my Surgeon performed 5 months ago … Continue reading There is some Good News!!
It seems my good leg ( my right femur) is no longer good and is about to head off on its own little adventure. After weeks of hospital admissions, MRI's, xrays and CT scans, my Specialists had a meeting on Friday to debate my case and decide how to best proceed with treating my yet unnamed bone … Continue reading The Next Leg of the Journey…literally!