A Year Later…One Step, Two Steps…Will There Be A Third?

Some dates are forever etched in our memories. I have a few but there are two I will never forget. October 6th 2014 is the first. It was the day my femur broke.   It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that … Continue reading A Year Later…One Step, Two Steps…Will There Be A Third?

The Non Negotiable Chronic Illness Rule

I love life's little challenges. I love problem solving and turning obstacles into opportunities. I love putting a positive spin on what would otherwise be a very negative situation. I've always done this, both in my personal and my working life. So, chronic disease really wasn't going to change my approach to finding a way … Continue reading The Non Negotiable Chronic Illness Rule

Chronic Illness Chess – Attack or Surrender

There are times in my chronic illness adventure when I'm not sure what my next move should be. Symptoms worsen, test results reveal disease progression and my energy and desire to fight wanes. My medical team is very concerned but also cautious. Intervention can make things worse and every time I have surgery I'm never … Continue reading Chronic Illness Chess – Attack or Surrender