I was sitting at our local cafe this week, which is situated on a Point overlooking the Bay and beautiful Islands beyond. It really couldn't be more idyllic and I am blessed to live so close to such a gorgeous place on Australia's east coast. As my husband and I were sipping our cool drinks … Continue reading The Tides of Chronic Illness
The term "Rare Disease" suggests unknown territory, complications and no easy answers. That terminology definitely describes my rare bone disease. My Orthopaedic Specialist appointment today didn't fully deliver on my great expectations but on some levels it did. It certainly delivered a sense of direction and further understanding of what it means to live with … Continue reading Accepting Reality
I've had a week of surprises. I should be used to the unexpected by now and generally I am. I take the shocks and twists and turns my body throws at me in my stride most days, most weeks. This week felt different though. Two weeks ago I felt a snap in my left foot. … Continue reading From Chaos to Calm
I left my Orthopaedic Surgeons office yesterday with a spring in my step which is quite an achievement on two crutches. I have been given a leave pass. A holiday. A break. A good break, not a leg break 🙂 6 months of no leg xrays, surgery or appointments with my Surgeon. He is giving … Continue reading A Break of a Different Kind
Finally there is some good news!! I saw my Orthopaedic Surgeon yesterday to review my latest x-rays and discuss the increased pain in my left non union broken femur. So wait for it.....My leg seems to be suddenly attempting to make new bone at the break site, despite the bone graft my Surgeon performed 5 months ago … Continue reading There is some Good News!!
Yesterday I had a really interesting appointment with my Orthopaedic Surgeon. An interesting appointment indeed! It was one of those when you just don't know whether to laugh or cry. My husband and I have a great relationship with my Surgeon and he knows I understand the ins and outs of my bone disease as … Continue reading To Laugh or Cry?
One thing we can guarantee when living with a chronic disease is that we will always be changing plans. My extra cleaning activities this week have rendered my legs useless. I too easily forget that I'm only 10 weeks into a 6 month recovery from major surgery & that time frame is based on someone … Continue reading Change of Plans
I'm nearly 4 weeks post surgery and this time around seems so much harder than all the others. I think the main reason for that is because I was only 8 weeks post surgery on my broken leg when I had this rod inserted into the other leg. Having 2 legs with titanium rods from … Continue reading 4 week and counting
It seems my good leg ( my right femur) is no longer good and is about to head off on its own little adventure. After weeks of hospital admissions, MRI's, xrays and CT scans, my Specialists had a meeting on Friday to debate my case and decide how to best proceed with treating my yet unnamed bone … Continue reading The Next Leg of the Journey…literally!
I saw my Orthopaedic Surgeon yesterday & I am having more surgery on Tuesday the 20th October on my leg. This is to swap the screw in the intramedullary rod in my leg from a static screw to a dynamic screw to jolt the femur into healing activity. Surgery was going to be today but … Continue reading Bone Stimulator to the Rescue!!