Accepting Reality

The term "Rare Disease" suggests unknown territory, complications and no easy answers. That terminology definitely describes my rare bone disease. My Orthopaedic Specialist appointment today didn't fully deliver on my great expectations but on some levels it did. It certainly delivered a sense of direction and further understanding of what it means to live with … Continue reading Accepting Reality

There is some Good News!!

Finally there is some good news!!  I saw my Orthopaedic Surgeon yesterday to review my latest x-rays and discuss the increased pain in my left non union broken femur. So wait for it.....My leg seems to be suddenly attempting to make new bone at the break site, despite the bone graft my Surgeon performed 5 months ago … Continue reading There is some Good News!!

A new fantastic Physiotherapist ~ Outcome = Work in Progress!

 Today was my first session with my new Physiotherapist. What an amazing find she is. It turns out she has a special interest in auto immune diseases. She knows all my Specialists and completely understands my overall health issues. I was just so pleased. Not only that but she took the time to work today with my … Continue reading A new fantastic Physiotherapist ~ Outcome = Work in Progress!