One of the things I have always loved is Interior Design. After working crazy hours, when I was able to work, I would like nothing better than to spend the weekend at home. It's always been my happy place. As a young girl I loved creating a new look in my bedroom regularly, using different … Continue reading Interior “Disability” Design
Today is Rudolph's 2nd Stomaversary. On the 11th November 2013 my little stoma friend was created and it is an important day to reflect and to celebrate ( as strange as that might sound). For a person with a stoma the day of its creation can be viewed two ways. One of despair at an enforced … Continue reading Rudolphs 2nd Stomaversary !
My left femur broke spontaneously on October 6th 2014. It just snapped in two, no warning, apart from pain at the site for a few weeks, it just happened!! From a medical perspective it is a pathological break. We now know I have a rare genetic bone disease. It's The Strongest Bone In Your Body....It … Continue reading The day my femur broke!
A dear friend of mine has a stoma called Rosie. Rosie has been giving her a hard time of late and she has been in and out of hospital as a result. Life has been tough but she is an amazing lady who keeps bouncing back and brings much joy to others ( more than … Continue reading Dickens meets Rosie ~ A special moment
I'm being discharged this morning with more questions than answers. That is not the fault of my medical team though, just the fault of my body. We know I have developed colitis, inflammation of the bowel, but we don't know if it is autoimmune ulcerative colitis or if it is being caused by a virus. … Continue reading Going Home
The weekend was not much fun as my stoma decided to seek attention. A phone call to my Colorectal Surgeon this morning has landed me admitted to hospital for review & treatment.....more hospital frequent flyer points to collect, except they don't have any.!! Now there's a business opportunity waiting for someone. On a more serious … Continue reading Room with a view – in hospital again
I have been asked this question many times. Friends and acquaintances are always so relieved when they see me in person as I look so normal. I don't look sick and some of that is due to my coping mechanisms! It has also been well documented about the fact that autoimmune diseases, in general, don't cause … Continue reading How Do You Cope?
Having a stoma requires a change of life and a change of mindset. Accepting that you now have to manage a normal bodily function a little differently is half the battle. For many people that can be an extremely difficult leap as they may have received their stoma in an emergency situation due to severe … Continue reading Why Name My Stoma Rudolph?
Today I visited my stoma nurse. I had my colostomy surgery 14 months ago and have really been blessed with a smooth ride in terms of adjusting to having a stoma. Today's visit was the first time I've seen a stoma nurse since my surgery and it was really just a nice chat about how I … Continue reading Stoma Nurse Visit
In 2010 I was in my mid 40’s, at the height of my career as an Executive Manager in a major bank. In April of 2010, I was getting ready to take 6 weeks long service leave to spend some quality time with my beautiful husband. We were going on a road trip, through South … Continue reading My Story