A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
You may read this blog post title with a sense of bewilderment. You may be wondering where on earth am I going with this and what on earth has any of it got to do with chronic disease and disability! Well, in my world these three things, Carparks, a Recliner and a Telephone, have all … Continue reading Carparks, A Recliner And A Telephone
Chronic Illness takes many things from us. Some aspects of our diseases we can’t control but there are some we need to find a way to overcome. Over the past 6 months I have felt like my disease has been winning. I’ve felt like a prisoner in a body determined to suffocate me. I’ve even … Continue reading I Can’t Give Up…..Please, Let Me Try!
We all know the saying; "When life gives you lemons, use them to make lemonade" It conjures up the notion of strength, determination, optimism, resourcefulness, resilience. All characteristics I've drawn on to deal with the "chronic illness lemons" continuously thrown at me. My lemons often feel like tennis balls in one of those practice machines. … Continue reading Let’s Make Some Lemonade!
You know the feeling of needing a holiday. Time away from your own life realities, if even for a few days. You are probably exhausted from work, life events, health issues, end of year fatigue and numerous other reasons. My list of reasons for needing a holiday is not short! A Year To Forget 2021 … Continue reading A Holiday At Home – My Very Own Bed and Breakfast
Some dates are forever etched in our memories. I have a few but one is a day I will never forget October 6th 2014. It was the day my femur broke. It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that even Specialists … Continue reading One Step, Two Steps…..Will There Be A Third?
On the 14th October 2021, after 5 weeks bed bound in hospital, due to my “acute” spinal collapse and bone disease progression, I was finally allowed home. I was sent home via ambulance as my condition hadn't improved. I still couldn't sit or stand for more than 2 minutes at a time. Walking with a … Continue reading Overwhelmed and Under Prepared
I'm lying in bed trying to take deep breaths to cope with the excruciating pain in my glands from a "mump like" virus. I've been told it could take 10 days for this acute stage of the viral infection to pass. I haven't slept for 4 nights. I should be beside myself, miserable, moody, mortified … Continue reading Chronically Content
Today I am literally stuck! Stuck upstairs until tomorrow morning at the earliest. Why? My stair lift (affectionately called shifty) decided last night that it needed a holiday from lugging me up & downstairs all day & it just stopped. No warning, no consideration of how much I depend on it. It just stopped & … Continue reading Stuck
One thing we can guarantee when living with a chronic disease is that we will always be changing plans. My extra cleaning activities this week have rendered my legs useless. I too easily forget that I'm only 10 weeks into a 6 month recovery from major surgery & that time frame is based on someone … Continue reading Change of Plans
I'm nearly 4 weeks post surgery and this time around seems so much harder than all the others. I think the main reason for that is because I was only 8 weeks post surgery on my broken leg when I had this rod inserted into the other leg. Having 2 legs with titanium rods from … Continue reading 4 week and counting
My Medical Musings 