A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
You know the feeling of needing a holiday. Time away from your own life realities, if even for a few days. You are probably exhausted from work, life events, health issues, end of year fatigue and numerous other reasons. My list of reasons for needing a holiday is not short! A Year To Forget 2021 … Continue reading A Holiday At Home – My Very Own Bed and Breakfast
Chronic Illness takes many things from us. Some aspects of our diseases we can't control but there are some we need to find a way to overcome. Over the past 9 weeks I have felt like I was in captivity. I've felt like a prisoner in a body determined to suffocate me. I've even woken … Continue reading You’re Only A Prisoner If You Lose Hope
Some dates are forever etched in our memories. I have a few but one is a day I will never forget October 6th 2014. It was the day my femur broke. It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that even Specialists … Continue reading One Step, Two Steps…..Will There Be A Third?
On the 14th October 2021, after 5 weeks bed bound in hospital, due to my “acute” spinal collapse and bone disease progression, I was finally allowed home. I was sent home via ambulance as my condition hadn't improved. I still couldn't sit or stand for more than 2 minutes at a time. Walking with a … Continue reading Overwhelmed and Under Prepared
I'm lying in bed trying to take deep breaths to cope with the excruciating pain in my glands from a "mump like" virus. I've been told it could take 10 days for this acute stage of the viral infection to pass. I haven't slept for 4 nights. I should be beside myself, miserable, moody, mortified … Continue reading Chronically Content
Today I am literally stuck! Stuck upstairs until tomorrow morning at the earliest. Why? My stair lift (affectionately called shifty) decided last night that it needed a holiday from lugging me up & downstairs all day & it just stopped. No warning, no consideration of how much I depend on it. It just stopped & … Continue reading Stuck
One thing we can guarantee when living with a chronic disease is that we will always be changing plans. My extra cleaning activities this week have rendered my legs useless. I too easily forget that I'm only 10 weeks into a 6 month recovery from major surgery & that time frame is based on someone … Continue reading Change of Plans
I'm nearly 4 weeks post surgery and this time around seems so much harder than all the others. I think the main reason for that is because I was only 8 weeks post surgery on my broken leg when I had this rod inserted into the other leg. Having 2 legs with titanium rods from … Continue reading 4 week and counting
Today was my first session with my new Physiotherapist. What an amazing find she is. It turns out she has a special interest in auto immune diseases. She knows all my Specialists and completely understands my overall health issues. I was just so pleased. Not only that but she took the time to work today with my … Continue reading A new fantastic Physiotherapist ~ Outcome = Work in Progress!
My Medical Musings 