Ultimately, it doesn’t matter what day it is.It matters that I make the most of every single day and make the moments within the day count. It matters that I don’t waste time being discontent about my circumstances.
A Year Later…One Step, Two Steps…Will There Be A Third?
Some dates are forever etched in our memories. I have a few but there are two I will never forget. October 6th 2014 is the first. It was the day my femur broke. It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that … Continue reading A Year Later…One Step, Two Steps…Will There Be A Third?
I'm lying on my bed, trying to take deep breaths to cope with the excruciating pain in my glands. It's like the"mumps" virus. I look like a bullfrog. It's not a virus, it's just blocked glands due to Sjogren's disease. It will pass but it will take a few days, or so has been my … Continue reading Chronically Content
Carparks, A Recliner And A Telephone
You may read this blog post title with a sense of bewilderment. You may be wondering where on earth am I going with this and what on earth has any of it got to do with chronic disease and disability! Well, in my world these three things, Carparks, a Recliner and a Telephone, have all … Continue reading Carparks, A Recliner And A Telephone
I Can’t Give Up…..Please, Let Me Try!
Chronic Illness takes many things from us. Some aspects of our diseases we can’t control but there are some we need to find a way to overcome. Over the past 6 months I have felt like my disease has been winning. I’ve felt like a prisoner in a body determined to suffocate me. I’ve even … Continue reading I Can’t Give Up…..Please, Let Me Try!
Let’s Make Some Lemonade!
We all know the saying; "When life gives you lemons, use them to make lemonade" It conjures up the notion of strength, determination, optimism, resourcefulness, resilience. All characteristics I've drawn on to deal with the "chronic illness lemons" continuously thrown at me. My lemons often feel like tennis balls in one of those practice machines. … Continue reading Let’s Make Some Lemonade!
A Holiday At Home – My Very Own Bed and Breakfast
You know the feeling of needing a holiday. Time away from your own life realities, if even for a few days. You are probably exhausted from work, life events, health issues, end of year fatigue and numerous other reasons. My list of reasons for needing a holiday is not short! A Year To Forget 2021 … Continue reading A Holiday At Home – My Very Own Bed and Breakfast
Overwhelmed and Under Prepared
On the 14th October 2021, after 5 weeks bed bound in hospital, due to my “acute” spinal collapse and bone disease progression, I was finally allowed home. I was sent home via ambulance as my condition hadn't improved. I still couldn't sit or stand for more than 2 minutes at a time. Walking with a … Continue reading Overwhelmed and Under Prepared
Today I am literally stuck! Stuck upstairs until tomorrow morning at the earliest. Why? My stair lift (affectionately called shifty) decided last night that it needed a holiday from lugging me up & downstairs all day & it just stopped. No warning, no consideration of how much I depend on it. It just stopped & … Continue reading Stuck
Change of Plans
One thing we can guarantee when living with a chronic disease is that we will always be changing plans. My extra cleaning activities this week have rendered my legs useless. I too easily forget that I'm only 10 weeks into a 6 month recovery from major surgery & that time frame is based on someone … Continue reading Change of Plans